The powerful documentary about Celine Dion and Stiff Person Syndrome

'I Am Celine Dion'

Celine Dion was determined that if she ever made a documentary about her life, it would reveal both the ups and downs. Following the release of 'I Am Celine Dion' on Prime Video, it’s clear she has stayed true to her word.

Photo: I Am Celine Dion / Prime Video

A personal revelation

In the documentary, Celine gives a firsthand account of living with Stiff Person Syndrome (SPS), a rare and challenging autoimmune disorder.

Photo: I Am Celine Dion / Prime Video

The harsh reality

SPS is marked by muscle stiffness and spasms that can severely affect one's quality of life. In the film, Celine not only discusses these challenges but also shares poignant scenes of her enduring an episode. These moments are raw and real, reflecting her intention to shed light on a disease that remains under the radar.

Raising awareness

"As the road to resuming my performing career continues, I have realized how much I have missed it, of being able to see my fans. During this absence, I decided I wanted to document this part of my life to help others who share this diagnosis," she said in a statement.

Photo: I Am Celine Dion - Prime Video

A rare condition

Affecting just one in a million people, Stiff Person Syndrome is more prevalent among women, accounting for 65% of those diagnosed. The condition is characterized by stiffness and muscle spasms that can immobilize someone temporarily.

An autoimmune challenge

The attacks involve involuntary contractions often triggered by sensitivities to noise, touch, or sudden movements. The root cause of SPS is unknown, complicating the matter further since it involves the immune system attacking the central nervous system.

When symptoms appear

The Genetic and Rare Diseases Information Center (GARD) notes that symptoms typically begin between ages 30 and 60.

Symptoms overview

Besides spasms, common symptoms include abnormal postures and falls triggered by spasms, as well as potential for cerebral palsy and epilepsy.

Psychological impact

The debilitating nature of SPS can lead to depression and anxiety due to the progressive loss of life quality and the daily challenges that come with the condition.

Treatment options

Treatment focuses on managing and reducing stiffness and spasms, using medications like benzodiazepines, diazepam, or baclofen, and treatments like intravenous immunoglobulin. Still, much remains to be discovered about Stiff Person Syndrome.

Photo: I Am Celine Dion - Prime Video